A lot has happened in the last 3 years. After surgery in March of 2007, Ivan made huge strides and completed 3 years of preschool. He continued speech and occupational therapy through the school and the hospital and also started daily growth hormone shots. This past April, he had his 6 year scans, they showed the metopic suture has closed again and now his sagittal suture has also closed. His second surgery is scheduled for September 7. Say a prayer for our mighty mouse.



Thursday, August 12, 2010

He Knows!

We spent yesterday at the hospital completing all of Ivan's pre-surgery appointments.  We saw the surgeon, a nutritionist, the lab, the anesthesiologist, and a child life specialist.  Ivan has been taking anti-anxiety meds for over a month now and yesterday we could see the positive effects.  He was bouncing off the walls and jumping off the exam tables but he wasn't as tense as usual. 
The child life specialist talked to him about his surgery.  He took it pretty well and is most concerned about the mask with the bubblegum flavor (he hasn't stopped talking about the "icky" bubblegum smell since his spinal tap).  He smelled the lemon/orange flavor and decided that would be better.  He asked if Chris and I would stay with him.  Once we answered, he flapped and squeaked, "I'm going to have a sleep over at the hospital!" 
We printed the book about surgery that Children's Mercy has on their website.  It is a picture book that explains what will happen the day of surgery.  He has been carrying it around all day and showing it to all his toys!
The boys are shaving their heads on Friday (I'll post pictures).  On Sunday we go back in for more lab work.

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