A lot has happened in the last 3 years. After surgery in March of 2007, Ivan made huge strides and completed 3 years of preschool. He continued speech and occupational therapy through the school and the hospital and also started daily growth hormone shots. This past April, he had his 6 year scans, they showed the metopic suture has closed again and now his sagittal suture has also closed. His second surgery is scheduled for September 7. Say a prayer for our mighty mouse.



Sunday, December 23, 2012

home

hanging with Alex 
 taking a break from basketball in the playroom
heading to the playroom with a "Hershey Kiss on my head" and "my dancing partner"! (IV tower)

Mrs. DeVuyst, Ivan's principal came to visit on Saturday.   


frustrated
He only had one short headache the entire time we were at CMH. And, less than two hours after being home another one started. Ugh. 
Still...not enough answers and too many questions.
We return to the neurosurgeon and neurologist in two weeks to  have the staples removed and discuss plan B (not sure what that will be).  
He did hold still when the surgeon unscrewed the bolt, but the staples made him about jump off the bed.  

In the meantime, he is beyond happy to be home and we've got some Christmas celebrating to do!
  
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