No helmet and No restrictions!
We saw Dr. Singhal for Ivan's 3 month post surgery appointment.
We are done with the helmet and will have a follow-up CT scan in 9 months.
He still has a few stitches that need to fall out and his head is very lumpy, but solid.
4 1/2 pounds and 3/4 of an inch
We went to endocrine Tuesday for the 9th of his growth hormone check-ups.
In the past 4 months he has gained a ton of weight and is continuing to grow. He is staying at 10th percentile for height and a whopping 25th percentile for weight! Two years ago the poor kid wasn't even on the growth chart.
OT and Psychology
Ivan also had appts with his therapist and his psychologist on Tuesday. They are both great at giving us ideas of how to give him more success socially and with his independent skills. They are also wonderful about keeping in touch with Ivan's school.
We are still keeping a very close eye on his blood pressure, his ptosis (droopy eye) and we are watching him for clumsiness and central sleep apnea. The last two are related to the back of his skull not growing at all.
Ivan starts his first full day of kindergarten tomorrow.
His vocabulary continues to increase and he is making connections and beginning to reason through problems.
I'll post some new pics later this week.
We are hoping to give him his first hair cut in 3 months. It is shaggy and curly. He also has a bald spot toward the front where he pushes and rubs his helmet on his scar when it itches!
