1 year scans

Ivan's scans looked great.  

He still has some screws that haven't dissolved and a couple areas near his temples were the bone hasn't regrown.  He is also showing some pressure on both sides of his head, but nothing he can't live with for now. 

He won't be going back to see Dr. Singhal for two years!!!

Ivan was a rock star. 

His little body was shaking the whole way to the hospital.

He asked his usual thousand questions and we practiced telling the donut, "You don't scare me."

He introduced himself to everyone in the radiology waiting room, he also asked them if they were having an MRI (tube), CT scan (donut) or a spinal tap.

When we got to the donut room he took a minute or two in the hallway to compose himself then walked to the doorway and said, "Well, hello donut!" 

Ivan wanted Chris to go for a ride on the bed.  Then he decided it was his turn.  He jumped on the bed, held still and it only took about 10 minutes.  So amazingly proud of our brave little guy.  He didn't let his anxiety get the best of him.  

Next stop was Dr. Singhal's office.  He told the nurses and Dr. Singhal, "I didn't let that CT scan scare me".

specs

Just like Alex

We are hoping it will motivate him to keep them on rather than use them as a weapon!

The glasses are specifically for ptosis (droopy eye), strabismus (lazy eye) and they have a small amount of correction for far-sightedness.  We are hoping to correct and strengthen the eye muscles as much as possible to avoid more surgeries.  His ptosis is getting bad enough that he may need an eye lift.  He is having trouble seeing out of his left eye.  He covers his left eye with one hand and says, "it helps me see better".  He'll also tell me his eye is "wiggling", which in Ivan speak means he is seeing double. 

We are trying to stay a few steps ahead of him.  I think we are in need of duct tape and super glue!

Ivan has multiple doctor appointments over the next few weeks.

He has scans with the craniofacial surgeon on Wednesday, a yearly check-up with our pediatrician, an appointment with his favorite psychologist, a dentist appointment, an endocrine appointment that includes x-rays, fasting, drinking sugar water that he despises and blood work for endocrine and genetics.  

Please say a prayer for his anxiety.  

I'll post an update on his scans as soon as we know something.

Also, Ivan is moving to Stilwell Elementary.  He will be in a class with 4-5 other ED (emotionally disturbed) kids.  The principal spent 1 1/2 hours with us, gave us a tour of the building and introduced us to the staff.  She has lots of enthusiasm and great ideas for integrating the ED kids into the typical classrooms.  

We are praying for a successful year.