A lot has happened in the last 3 years. After surgery in March of 2007, Ivan made huge strides and completed 3 years of preschool. He continued speech and occupational therapy through the school and the hospital and also started daily growth hormone shots. This past April, he had his 6 year scans, they showed the metopic suture has closed again and now his sagittal suture has also closed. His second surgery is scheduled for September 7. Say a prayer for our mighty mouse.



Friday, December 21, 2012

Long Day

"I've got a tubie in my head."!

MRI/MRV and cranial pressure monitor day
All went well why he was under sedation.
He is tolerating it all like a trooper.
His pressures were high at the beginning of the day.  
But, throughout the day they have decreased to normal levels. 
He also has a fever and can't keep any solids down.  
If his pressures stay low through the night, we will probably be home tomorrow.  
Darn
more questions and not enough answers

as Dr. Murphy his neurologist says, "Ivan is a complicated lad"
    
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