A lot has happened in the last 3 years. After surgery in March of 2007, Ivan made huge strides and completed 3 years of preschool. He continued speech and occupational therapy through the school and the hospital and also started daily growth hormone shots. This past April, he had his 6 year scans, they showed the metopic suture has closed again and now his sagittal suture has also closed. His second surgery is scheduled for September 7. Say a prayer for our mighty mouse.



Tuesday, June 21, 2011

specs


Just like Alex
We are hoping it will motivate him to keep them on rather than use them as a weapon!
The glasses are specifically for ptosis (droopy eye), strabismus (lazy eye) and they have a small amount of correction for far-sightedness.  We are hoping to correct and strengthen the eye muscles as much as possible to avoid more surgeries.  His ptosis is getting bad enough that he may need an eye lift.  He is having trouble seeing out of his left eye.  He covers his left eye with one hand and says, "it helps me see better".  He'll also tell me his eye is "wiggling", which in Ivan speak means he is seeing double. 
We are trying to stay a few steps ahead of him.  I think we are in need of duct tape and super glue!
Ivan has multiple doctor appointments over the next few weeks.
He has scans with the craniofacial surgeon on Wednesday, a yearly check-up with our pediatrician, an appointment with his favorite psychologist, a dentist appointment, an endocrine appointment that includes x-rays, fasting, drinking sugar water that he despises and blood work for endocrine and genetics.  
Please say a prayer for his anxiety.  
I'll post an update on his scans as soon as we know something.

Also, Ivan is moving to Stilwell Elementary.  He will be in a class with 4-5 other ED (emotionally disturbed) kids.  The principal spent 1 1/2 hours with us, gave us a tour of the building and introduced us to the staff.  She has lots of enthusiasm and great ideas for integrating the ED kids into the typical classrooms.  
We are praying for a successful year. 


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