A lot has happened in the last 3 years. After surgery in March of 2007, Ivan made huge strides and completed 3 years of preschool. He continued speech and occupational therapy through the school and the hospital and also started daily growth hormone shots. This past April, he had his 6 year scans, they showed the metopic suture has closed again and now his sagittal suture has also closed. His second surgery is scheduled for September 7. Say a prayer for our mighty mouse.



Monday, September 6, 2010

3 Weeks




The first picture was taken 2 weeks post surgery and the second picture was taken today, 3 weeks post surgery.  In just a week the swelling has gone down enough that we can see a few of the new plates, screws, ridges and bone in his forehead. 

Ivan had a big week.

Aunt Susie came to visit. 
 When Ivan wasn't giving her coy sideways glances, he was telling her that he loved her.  He couldn't get enough!

Ivan went to his first cardiology visit.
Another EKG.
Seems that he does have a harmless sinus arrhythmia.
But, they are concerned about his blood pressure. 
It has always been very high, the assumption has been his anxiety issues.
It could also be related to his intercranial pressure.
So, we left with instructions to call his synostosis surgeon tomorrow and
try to get three "calm" blood pressure readings.
The cardiologist thinks it may be related to his kidneys.
So, we are being referred to a nephrologist.

We almost canceled the cardiology appointment. We figured there wasn't a concern with his heart and that he'd been through enough lately.  We are so glad we went.  Except, Ivan had a rough time.  It was a horrible reminder of how many things he has had to endure.  His anxiety was through the roof.  Once we finally were able to get the EKG stickers on his chest and Ivan calm enough for the machine to register, his pulse was up to 206 and his pressure over 170.  

Ivan and I ate visited his classroom and went to lunch last Wednesday.
Kindergarten starts tomorrow.
Ivan is "so excited" and a little nervous too.
I will post pictures tomorrow.

Thanks for your prayers, Wendy

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